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Dementia is a life-limiting condition and there is information about later-stage dementia and life expectancy on this page. Some people may find this upsetting and difficult to think about. For more general information about the different stages of dementia, see The progression and stages of dementia page. By the later stage of dementia, the condition will have a severe impact on most aspects of a person’s life. The person will eventually need full-time care and support with daily living and personal care, such as eating, washing and dressing. This support can be provided by care at home but is more often given in a care home setting. Symptoms of all kinds are likely to cause the person considerable difficulties in this stage, but altered perception and physical problems are often the most noticeable. By the late stage, the symptoms of all types of dementia become very similar. The later stage of dementia tends to be the shortest. On average it lasts about one to two years.
Get practical advice and tips on supporting a person with later-stage dementia. Find out more
Many people with later-stage dementia will struggle with their memory of recent events. They may often think they are at an earlier period of their life (known as ‘time shifting’). This can cause challenging situations, for example, if they ask to see someone who is no longer alive. People with dementia in the later stages may also stop recognising familiar places, objects, and people. A person may not recognise themselves in a mirror, nor a close friend or family member. This might happen because they only remember how a person looked when they were much younger. Language difficultiesIf a person with later-stage dementia speaks more than one language, they may lose one of the languages they learned later in life. Eventually, they may only understand the language of their childhood. A person’s spoken language may eventually be reduced to only a few words or lost altogether. They may also understand fewer words. But people with dementia at this stage may still be able to understand gestures, facial expressions and body language. They may also use non-verbal communication to express their feelings or needs. Changes in mood, emotions and perceptionsChanges in mood remain in the later stages of dementia. Depression and apathy are particularly common. Delusions and hallucinations (especially of sight and hearing) are most common in the late stage of dementia. They are not always distressing but they can explain some changes in behaviour because the person’s perception of reality is altered. People with later stage dementia often respond more to senses than words. They may like listening to songs or enjoy textures. For example, they may like the feel of different types of material. Changes in behaviourThe changes in behaviour that can happen in the middle stage of dementia can also happen in the later stages. Aggression in the later stage of dementia is often a reaction to personal care. Someone may hit or push away those trying to help them or shout out to be left alone. The person with dementia may have felt scared, threatened or confused. Restlessness is also very common. Sometimes the person may seem to be searching for someone or something. As in other stages, it is also important to consider whether the person has other needs that are not being met. Someone with later-stage dementia will often be unable to tell others how they are feeling. A sudden change in behaviour can point to a medical problem (for example, pain, infection or delirium). Physical difficulties in the later stages of dementiaThe physical changes of late-stage dementia are partly why the person is likely to need much more support with daily living. At this stage they may:
The person’s reduced mobility, in particular, raises their chances of blood clots and infections. These can be very serious or even fatal so it is vital that the person is supported to be as mobile as they can.
Whatever type of dementia a person has, their life expectancy is on average lower. This is why dementia is called a life-limiting condition. This can be very upsetting to think about. However, it’s important to remember that, no matter how a person’s dementia changes over time, there are ways to live well with the condition. Good support can make a huge difference to the person’s quality of life at all stages of dementia. How long a person lives with dementia varies greatly from person to person. It depends on many factors, such as the ones listed on The progression and stages of dementia page. Other factors include:
How does dementia reduce life expectancy?Dementia reduces life expectancy in two ways. First, some of the diseases that are closely linked to Alzheimer’s disease and vascular dementia, such as diabetes and cardiovascular disease can mean a lower life expectancy. For example, vascular dementia is closely linked to heart disease and stroke. A person with vascular dementia is at risk of dying at any stage of dementia, from one of these. The other way that dementia reduces life expectancy is through the effects of severe disease. By the later stages of dementia, a person is often very frail with a weakened immune response, likely to be spending a lot of time in bed and possibly having problems swallowing. These all make them much more likely to develop other medical problems that can lead to death, such as infections (like pneumonia) or cardiovascular problems (like a blood clot in the brain or lungs). This is why the later stage of dementia is often the shortest. A person with dementia can also die at any stage from another condition not closely related to their dementia. Cancer and lung disease are common examples.
The type of dementia a person has can also affect how long they live with dementia. These figures for the number of years a person may live after a diagnosis are just averages and some people live longer than this. This information may be upsetting to read and think about but it is very important to remember that, with the right support, people with dementia can live well at all stages.
The average life expectancy figures for the most common types of dementia are as follows:
To find out about the support available to someone at the end of their life, and to their carers, family and friends, see our End of life care information. You can also call Alzheimer’s Society on 0333 150 3456 for personalised advice and support on living well with dementia, at any stage.
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